Losing My Hearing: On Being Human.

Losing My Hearing: On Being Human.

Community Most Popular Posts Motivation + Inspiration WANT Women

As long as I can remember, I’ve gravitated towards accessible role models. I’m not talking the people who are untouchable but put on a “look-how-down-to-earth-I-am-STARS-THEYRE-JUST-LIKE-US” demeanour for their fans. I’ve always been most interested in the women who you can just SENSE are onto something huge even if you don’t know exactly what everything is – who are doing big things because they feel called to do so – who aren’t concerned with the BS of what things look like, but are ALL-IN when it comes to what they FEEL like. Jennifer Pastiloff is one of those people to me.

Jen and I met back in 2011, at a party for a mutual coworker/friend’s birthday. I was the new kid on the block at the job, and I felt awkward and self-conscious about my childish desire to please others – a trait I felt I should have “outgrown by now.” Couple this with my gregariousness-masked introversion and intense preference for one-on-one conversations, and I was close to crawling out of my own skin. Please let them like me, I silently begged. 

I don’t remember much about that night, but I remember meeting Jen and spending almost the entire night talking to her. This, along with our mutual friend’s emphatic demo of his new water filtration system (#fitnessinstructorparties), would be my overarching memory of the evening.

She listened intensely. She spoke assertively. She was pure kindness. I’d found a kindred spirit – a new friend – and I couldn’t put my finger on it, but I had this gut feeling that whatever Jen was up to, she was onto something big.

I soon learned that yes, Jen taught yoga classes at the same company I did…but she had a LOT of other things brewing. Between her writing, her activism, and her community building skills, she became a beacon for me of what’s possible when you own your talents – ALL of them. She was the first one who got me to really check myself and my anxious brain – Katie, is this true, or are you telling yourself a story? – when I casually said over dinner one night that I “knew” someone didn’t like me because *well look at all the evidence* (spoiler, there was very little evidence). She was one of the first people to champion my writing, and the person who told me to get specific yet relatable when it came to getting people on board with what I had to offer to the world. “People need a gateway that they understand; that they already know and relate to. Get them in the door with that, then blow their minds with what you’ve got to give.” She’s been using social media in a smart, supportive, and community-focused way since way before social media became something that should have a “strategy,” and she’s been supporting women and fighting for the rights of marginalized communities since way before others could see her do it.

That, to me, is one of the marks of a true leader: they make a difference whether you know about it or not.

Jen’s debut memoir, On Being Human, is set to release in Spring 2019, and it’s already getting massively well-deserved buzz. Centered around the touchstone stories Jen tells in her popular workshops, On Being Human is the story of how a starved person grew into the exuberant woman she was meant to be all along by battling the demons within and winning. It’s about how years of waitressing taught her to seek out unexpected beauty, how deafness taught her to listen fiercely, how being vulnerable allowed her to find love, and how imperfections can lead to a life full of wild happiness. The world is about to watch her explode. And so, before they do, I wanted to give you all a chance to meet her, so you too can say you knew her “way back when.”

Jen’s laughter is infectious and her personable candor is a breath of fresh air. Her down-to-earth humor gives you the feeling that you’re hanging with a girlfriend, not simply pounding out Warriors and Down-Dogs. No topic is off-limits with Jen, no issue too personal, no joke too irreverent. Her classes, workshops, retreats, and now BOOK all have one common theme: making your life truly happen. She believes that no dream is too small, no goal is unfathomable. As long as you can see it happening – it can happen.

I am honored to share this piece of Jen’s – about deafness, death, remembering, and rebirth – here today. I know you’ll love it.

WANT Jen:

jennifer pastiloff on being human

Losing My Hearing.

The natural history of this archipelago is very remarkable: it seems to be a little world within itself.
—Charles Darwin, “Voyage of The Beagle”

 

After my father died, we left New Jersey with its death and dying and cold winters and fled to Southern California. We were the three of us in a station wagon—my mother, my sister, and I, and it was a simple case of “should we turn left or right?” Which, I’ve come to realize, is the way most of life works.

Door number one: you stay in college, wear turtlenecks, work in a university.

Door number two: you drop out of college, run for three hours a day, wait tables. (And turtlenecks, they’re the devil.)

Turn right: he does drugs “one last time” and dies.

Turn left: and there he is on the sofa in his frayed cutoffs and we never make the trek to California.

So a should-we-turn-left-or-right happens and we choose left instead of right and end up in Santa Monica, where we live next to a man, his two daughters, and their beagle, Darwin, whom they keep locked up in a cage.

Darwin was a mean little dog. But hey, I might be mean too if I was confined all day to a small metal prison inside a dark kitchen. His bark was anxious, filled with accusations. I can see now how lonely he must’ve been in that little box. The kitchen empty, the lights out, and Darwin sitting in his own piss. I’d be angry too.

~

I’m leading a yoga and writing retreat in The Galapagos Islands and no matter where you go, you hear Darwin’s name. Me? I can’t hear well, so I only catch the tail ends of sentences. Bits of words: tortoise, finch, North Seymour Island, sea lion, lava, Darwin this, Darwin that. It’s rumored Darwin rode on the backs of ancient tortoises. A cacophony of noise. Meaningless to my failing ears.

People say I don’t pay attention. You don’t listen. You’re an airhead, they say. I want to wear a sign that says “Don’t make up stories. I just can’t fucking hear,” but that may be too on the nose, so I usually just drop a few steps back until I am away from sound altogether.

It’s exhausting straining to make out what people are saying. I read lips, but that’s also sleep-inducing. Staring so hard at mouths making their O shapes or their various forms of joy or disgust, it can wear a person out. Sometimes I simply stare into space, because really, what else is there to do when you can’t hear and you’re tired of pretending?

I’m alone in a crowd of people, the bearer of silence among noise. Easily confused by the letters C and D and E. I think Tom is John. I hear my name when it isn’t called. Everything starts sounding the same. Everything starts to sound like nothing. I think of bursts of silence as holy things.

The name Darwin is spoken and I see that little dog trying to bark his way out of a cage. My own drifting off from groups is something like that. I bark my way out of a room until I am gone.

~

Our guide, Carlos, tells us to look up when we get to the South Plazas Islands. “There’s a frigatebird,” he says, and points to a bird soaring overhead. “Their bones are hollow and full of air. They don’t have to flap their wings, so it saves them energy.” He tells us that they often attack other birds. “They are mean birds.”

I think of Darwin the beagle and my own conservation of energy. And how subjective a word “mean” is with its latching-on abilities. You can slap that word, with its simple meat sound, onto just about anything. Mean bird, mean dog, mean girl. How it can cover what we don’t understand. A lazy slab of raw judgment.

Frigatebird. I hear “frig it.” Synonymous with “fuck it,” which seems fitting to me. These sky bullies with their reddish throat pouches that look like balloons.

I often make up my own words to get by in the world. I’ll write down what I think someone is saying and Google it later. Usually I’ve gotten it wrong, but Google will guess close enough and show me the right version without any judgment.

My evolution has been backwards—from hearing to not hearing.

When I can no longer hear sounds I will still hear colors. @jenpastiloff Click To Tweet

During my yoga class, I ask everyone what they want to let go of. Judgment, the word “should,” my anger at my family, are among a few of the things written. I ask my students to step outside onto the grass, under the coffee trees here at Semilla Verde. We stand in a circle, eyes closed, out in the rain in the mud of The Galapagos, and it feels like the right thing to do. One woman has tears streaming down her face. A cat walks by and also a giant tortoise. I think about turning left or right.

We stand in the grass in our bare feet and I ask, “Can you feel how connected we all are?” which sounds like some bad yoga teacher cliche. The cat stops in between us, the woman with the tears down her face looks up, and under the canopy of trees I try to memorize colors because when I can no longer hear sounds I will still hear colors.

One of the women on my retreat hands me a note folded into a little triangle. It says: “The truth is I’m in excruciating pain. The truth is I don’t know how to express myself. ” How misunderstood so many of us are—the woman with the the note, Darwin the dog, me with my bad ears.

~

I’ve bought each person a mini Ecuadorian bottle of champagne for Thanksgiving. (You’ve never really seen a star-filled sky until you’ve stood on the balcony of Semilla Verde Lodge in Puerto Ayora, Ecuador.) We go outside and clink to what we’re grateful for.

Our guide Che Che’s excitement at his job. “Hey guys! Look at that, the male sea lion is surfing!” To see someone so passionate about his job. I’m grateful for that. I want to be that,

This beautiful place,

Spending Thanksgiving with people I choose to spend it with for the first time in my life,

Ecuadorian champagne,

the iguanas.

We clink and drink and stare up at the marvel of a sky.

When we come back inside someone turns down the lights. For ambiance. And there I am at the head of the table alone inside all the noise. It’s too dark to lip-read. I’ve lost my only tool so I drift back to New York City in October. I’m at Le Pain Quotidien, having lunch with the poet Michael Tyrell. We’ve been friends a long time. We’ve traveled to China together, we both received a fellowship to study at Bucknell as poets for a summer. We call each other Bubby, and neither remembers why.

I ask him to read a poem so I can record it. “Mike, read something. I’ll record it and post it. People need to know your work.”

The café is loud and I can’t hear most of what he says between my hearing loss and the clanking plates, but I record him anyway on my iPhone. He’s a beautiful poet. He reads a poem called “Falling Stars” because, he says, that was all he had on him.

I’m not sure I

saw anything bright fall, from heaven.

My best friend calls them bad omens,

anyway, falling stars she calls them.

She sees bad things even in the sky, these days—

See those clouds up there, she says,

the government sprays them

to keep us under control.

I have a disease because of them.

There are fibers growing from my skin.

You don’t have to believe me.

I’m used to not being believed.

Last week she said she saw a man

licking a pay phone at the commuter station.

He did it quickly, guiltily—like a shoplifter.

But when he was finished he held his head high,

as if this, by whatever design,

was his lot, and nobody else’s.

As we sit in the dark and people begin spewing their Thanksgiving thank yous, one of the women says, “I’m grateful for the shooting star I just saw,” and I think of Michael’s poem.

I’m useless as the head of the table. The voices make their own little countries, each one its own little word map. Unable to make sense of the words, I close my eyes and decide I must be like the man licking the payphone in Michael’s poem. By whatever design, this is my lot, and nobody else’s.

The first time I acknowledged that my father was gone was Thanksgiving 1983. He had been dead since July 15, but somehow the empty chair at the head of the table that Thanksgiving was the first time I spoke of his absence. “Where is my father?” I asked.

That was the night my mother decided we’d leave New Jersey, our house, bad weather.

I think that perhaps words are overrated. Talking, unnecessary. @jenpastiloff Click To Tweet

Rob, the man who owns the house here in the Galapagos, is a lively Brit who’d gone to Spain to become a dive instructor. He’d somehow ended up owning a coffee farm in the Galapagos, where he now runs a hotel with his Ecuadorian wife and their two small children. He reads my latest work over my shoulder and startles me with his thunderous voice: “Your father sounds like me. Loud and farts a lot.”

I tell him I don’t mind that one bit and that I like loud people.

I do like him. He is about to move to mainland Gyuaquil so his daughter Iona, a dead ringer for Pippi Longstocking, can attend a good school with the kids of the “movers and shakers” of Gyuaquil. He says that he knows Iona will stay Iona, and that what has made her here in the Galapagos—all those morning walks with tortoises—will remain a part of her. I believe him.

I watch Iona pick flowers with the cook’s daughter, an Ecaudorian girl who speaks no English. Each hands me a bouquet of purple flowers yet neither says a word. Purple flowers in-hand, I think that perhaps words are overrated. Talking, unnecessary.

As a volcano erupts and empties its magma chamber, the surrounding rock will collapse into it and leave huge craters in the earth. On Santa Cruz Island, collapsed into the earth, sit Los Gemelos, The Twins, as they are called, two large craters that were once underground magma chambers. Rob’s love of the place is evident. He has taken my group here to explain about natural selection and Darwin, survival of the fittest, volcanoes and moss. I stand as close to him as I can so as not to miss anything.

When I was a child I used to make this weird sound when I concentrated. It was a miserable sound, a godawful droning noise, like one of those old tests that television networks used to broadcast (This is only a test…) For hours at a time, as I colored or read, I would make that sound as if I were alerting the world to something. People made fun of me for it. I forced the sound back into my body and locked it inside of my head.

 

After decades of living in profound denial, I finally accepted that I had severe hearing loss. The audiologist put me in a box, stuck a piece of white paper over his mouth, and asked if I could hear what he was saying with the paper covering his lips. I couldn’t. I understood then that I was going deaf.

Again I thought: words overrated, talking unnecessary.

In a box, locked up like Darwin the dog.

When the doctor said severe hearing loss on top of tinnitus, it occurred to me that the eeeeeeeeeee sound I had made as a child was my way of mimicking what I heard in my head. I was trying to get it out. I was trying to drown it out. Anything to make it stop.

The phrase adapt or die makes sense. I’ve adapted to the constant ringing in my head. When it becomes too much to bear, I adapt by drinking wine. Or by sleeping.

The key to evolution is remembering. @jenpastiloff Click To Tweet

During one of our designated beach days, while we do our best not to accidentally step on the gigantic iguanas all over Tortuga Bay, Rob tells us that some of the kids on the Galapagos Islands don’t know that they live on an island. They have no idea that there is ocean all around them, that there is geography beyond their bodies.

I remember Michael’s poem and the man licking the payphone. This is our lot, I think. Me, the payphone licker, the kids on the island. The frigatebirds. We do what we must to survive.

Snorkeling on Bartolomé Island, I would never know that I am hard of hearing unless I remind myself—and why would I? Why the constant need for reminders? So I just float there for a long time on the surface of the sea, listening to my breath as if through a can. I can turn left or right and it won’t make a difference. My ears, having evolved into something else, are no longer part of my body.

The key to evolution is remembering. The last line of Patrimony, Philip Roth’s memoir about his dying father: “You must not forget anything.” It plays in my head as I snorkel.

Underwater, I remember what causes me pain and how to avoid it. This is our lot, I say to the fish silently.

I remember Darwin the dog and the colors in front of me (aqua blue, tortoise grey, inky green) as if they have already vanished, my memory the only sure confirmation of their existence.

I remember my heart, and I hear it, maybe, probably, for the first time ever.

To preorder On Being Human, click here.
Follow Jen on Instagram, Facebook, Twitter, at @NoBullshitMotherhood, and at @GPowerYouAreEnough.
This post originally appeared here.